Erind Thartori

Mother Teresa University Hospital, Tirana, Albania

Abstract Title: NURSING CARE FOR AMYOTROPHIC LATERAL SCLEROSIS

Biography: Introduction For patients with ALS, care is needed to maintain function, manage complications, and improve quality of life. ALS, also known as Motor Neuron Disease (MND) with ICD10 code G12.21, is a progressive neurodegenerative disease that affects motor neurons in the brain and spinal cord, leading to its weakening, leading to its weakening. The cause of the disease remains unclear and is often related to a complex interaction of genetic (mutations in SOD1, C9orf72, TARDBP, FUS) and environmental (toxic, trauma, and environmental exposures) mediators. The global prevalence is estimated at 1.5 to 3 cases per 100,000 population. Purpose The purpose of this paper is to assess the quality of life of patients with Amyotrophic Lateral Sclerosis and to analyze nursing care practices and strategies that affect their physical, psychological and social well-being. Also, to identify the main problems and needs of patients with ALS for nursing care. Methodology Materials have been collected from various sources regarding European models of nursing care for patients with ALS that they use and their implementation in our country to have the best possible model in the nursing service in Albania. Conclusions The quality of life in patients with ALS is significantly affected by the progression of the disease, especially in motor, respiratory and social aspects. Multidisciplinary nursing care has a key role in supporting patients and their families, improving physical function, psychological well-being. The most effective nursing care strategies include systematic monitoring of vital parameters, management of respiratory and nutritional symptoms, health education and prevention of pressure ulcers. Keywords: Amyotrophic lateral sclerosis, quality of life, nursing care

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